Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis, 2nd ed.: It's Mitochondria, Not Hypochondria
J**P
Finally, an excellent book on chronic fatigue
I've had severe chronic fatigue for the past 15 years. I've purchased other books which were of no help. I've seen countless doctors. I am so thankful for finding this book after desperately searching for info. that works. I also purchased a copy for my doctor. I feel validated for once in my life after reading this book. This is the best current info. out there.
F**K
"It is in the mitochrondria, stupid!!" credit to James Carville for President Bill Clinton
Dr. Myhill has been the singular ME/CFS expert whose analysis most fits my experience. There are many other brave researchers around the world; however, as a practician, Myhill seems to understand the process of the disease lies in its effect on the mitochondria. I had been checking her website for years. I stopped for a few years and was thrilled to discover that she had published a book and updated it in just a few years. I am now transitioning onto the Paleoketogenic diet she recommends. Even though I have been on the Paleo diet quite strictly for about six months, I was not recovering from my recent serious ME relapse. I think I see a difference in my functioning after only a short time on the Paleoketogenic diet she recommends for all humans, even those not stricken with this horrible disease which wastes lives all over the world. I cannot thank Dr. Myhill enough for her courageous stand for those of us suffering from a disease with no name and no known cause. She is one of my heroes. Buy her book even if you do not think you have this disease. It will teach you what is wrong with our food/diet system. #ME/CFS #MILLIONSMISSINGp.s. She tells those of us who are suffering to skip the entire first half of the book as deciphering the science will be too much in our severely ill state. I have begun, as she suggested, with the second half of the book which describes the diet. The idea is to return to the first half when one is feeling better and can best absorb the research. My personal physician agreed with switching from Paleo to Paleoketogenic as a trial. My personal physician agrees that ME/CFS seems to be 'located' in the nervous system. A high fat, low carbohydrate diet has been prescribed as a seizure preventative protocol my personal physician reminded me. This is completely inline with the notion that ME/CFS is, at the very least, stressing the nervous system. My personal theory is that is is a retrovirus which goes dormant in the nervous system and reactivates when patients are under stress. Of course, this is only one clue as many victims never get the least bit well. I have had relapsing/remitting ME/CFS for nearly 48 years, my entire adult life. Now in retirement, I am trying to treat my disease first with the idea that I might have some functioning years left to me. Please read about the #MILLIONSMISSING movement. We have been alone for almost a century now, abandoned by mainstream medicine which has earned my enduring loathing for its neglect of us.
A**E
Highly recommend if you're trying to find out what's causing you to be chronically fatigued
Excellent, excellent, excellent. So far my doctor has backed Dr. Myhill up on everything she's has written in this book. That said, I haven't yet mentioned the mitochondria tests or the keto-paleo diet to him, but I will. Right now I'm on the elmination diet (to determine if I have any sensitivities and/or allergies) and when that is done I'll discuss Dr. Myhill's dietary suggestions with my doctor.One of the things I really appreciated about this book was how well Dr. Myhill explains ATP and mitrochondria -- what they are, how they work, and why it matters. So many things with my CFS clicked into place reading this book, especially possible reasons for my perpetual lactic-acid related fibromyalgia pain.I also appreciated how Dr. Myhill discusses the fact that it's tragic how the symptom -- chronic fatigue -- became the syndrome's most well-known name. How naming a disease after its primary symptom set it up for public doubt from the start.I definitely agree -- CFS needs a proper name, one that doesn't call the disease its primary symptom. But I guess until they figure out what's causing it we'll never know.She emphasizes that if one is chronically fatigued then there is a big red flag screaming that there's an underlying problem that needs to be uncovered not covered up with meds. And certainly not scoffed at ("Everyone's tired. Get over it and get your ass up and quit being lazy.") With CFS, that red flag appears to be telling us that body's ability to efficiently make and utilize ATP has been compromised.The good news is more and more doctors and researchers and members of the general public are recognizing that CFS is not a yuppie flu or a bunch of women whining about being tired. As Dr. Myhill puts it, "It's mitochondria, not hypochondria." Amen to that!
G**P
Very helpful if you suspect you have ME/CFS (or know you have it)
In depth and way more info than 99.999% of docs would be able to share with you (docs DO NOT know this disease, unless you go to a small handful of ME/CFS specialists). Do yourself a favor and educate yourself on ME/CFS, because you absolutely cannot rely on the medical community to diagnose quickly, or to warn you of risks associated with overexertion. Many (or most) docs would tell you to exercise to combat your fatigue without thinking twice - you are not going to get those kind of harmful suggestions in this book.This is the best book I've found to help yourself with (at least suspected) ME/CFS - you may never see an appropriate specialist for this disease, so you have to take recovery into your own hands. This book is a great start, and I am following the general protocol (minus ketogenic diet). This really helps. Be ready for some atypical type of suggestions though - author is a medical doctor, but she comes across much more like a naturopathic doctor. Take what you need, and leave the rest. But she has 35 years experience treating ME/CFS. Your doc - they probably have 0 days experience, along with a duffel bag full of poor medical guidance and biases toward the diagnosis.
J**S
If I met anyone with the same symptoms as me I would buy them this book.
Must buy and must read if suffering from post viral fatigue or chronic fatigue syndrome. This book meaningfully impacted my symptoms in a. short time. That almost sounds like a miracle cure - it is not. But it really did help. I would give this 10 stars.The hyper supplementation approach advocated in the book yielded immediate results for me (also available on the web). I added the supplements individually and found that Ribose had an instant impact - alleviating my 'allergy' type symptoms, helping to curb post exertion malaise, and I stopped using my reliever inhaler - which I was using every night.It is not a cure, but the book provides a working theory as to what is happening with the condition and why Ribose might help + other supplements. It genuinely worked for me.The book provides explanation and workable theories. I find them interesting and plausible. I hold a degree in engineering - and am applying critical thinking here. My Harley Street consultant was open to me trying the approaches but said it the book is not backed by science. But the Ribose worked, and conventional accepted medicine has no explanation for that.I think/hope the theories in this book become more accepted in the next few years.Dr Myhill is a personal hero for me.
M**G
Best Book so far on ME and CFS - very comprehensive
I have been ill with ME and Chronic pain since 2006. I realised a very long time ago that my GP was useless - they really do not have any clue about how to treat this condition, so since 2008 I have taken responsiblility for my own health and recovery and I have had some success. Using the Bell CFS ability scale (in the book) I have gone from a 10 in 2008 and currently I am in the 40-50 range. My goal is to move out of this range. I do/have done/tried/do a mulitude of treatments/diets/supplement/lifestyle changes and along the way read a ton of books over the years. Many of those programmes have helped but this book, for me anyway pulls together a lot of the information I already knew into one comprehensive package but it also provides me with new information in a way that I can follow easily. I really had not done much on energy delivery and that chapter resonated with me. I started taking the supplements this week and while my body is still adapting to the programme, I am sure this is going to help as my sleep is already improving eg instead of waking at 2.00am and staying awake for hours. I am now sleeping through the night!I am not following all aspects of Dr Myhill's programme but taking it one step at a time and see what improves and what does not. Recovering from this illness is not easy and it does require a lot of effort, in my experience there is no quick fix but I am proof that you can improve and my goal is to keep on going. Thank you Dr Myhill.
C**T
incredibly useful book
incredibly useful book, not just for sufferers of chronic fatigue as it's info is helpful also in improving general nutrition knowledge. I have gut dysbiosis and malabsorption. Learnt so much about nutrition and supplements and put it to use. It's very technnical but clearly written for the non-expert.
M**R
Not worth the money for the lay person.
Quite expensive. There is lots of advice and complex methods to use not sure this doctor should be writing this for the patients. I question if she knows whose she’s treating.
D**E
This book covers many issues.
An excellent book on the subject of M.E. written by an emanant doctor. I should add, that this is only in my humble opinion, as there is now much more documented research being done on the subject.
TrustPilot
1 个月前
1 周前